• Hannah Phillips

ozED Encouraging Kids with ED to Live Life to the Fullest

Ectodermal Dysplasia (ED) is a genetic condition which affects teeth, sweat glands, hair, skin and eyes, resulting in issues like minimal hair and teeth, inability to regulate temperature, eczema and dermatitis, and dry eyes - with no cure available.

OzED is the Australian ED support group that runs an annual camp and conference to support parents and children living with ED.

As a volunteer organisation, ozED requires support to continue helping those children and families manage their condition.

Anita spoke to Jenny from ozEd to find out more.

To find out more information, head to the ozED Facebook group.

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